If you are interesting in finding out more about MCT8 or wish to connect with a community of parents and affected individuals, the MCT8 Foundation is a great resource.
The National Organization for Rare Diseases (NORD) is dedicated to improving the health and well-being of people with rare diseases by driving advances in care, research and policy. Their website allows for
The MCT-8 Research Foundation is based in Germany and is dedicated to finding a cure for MCT8/AHDS.